Caregiving 101
Because multiple myeloma is a progressive condition, your loved one's needs will likely change over time. So being flexible will be key in your role as caregiver.
Regardless of the status of your loved one's disease, one of the most important ways you can help is simply by listening. Really hear what they are saying. Sometimes, their requests will be actionable, and you can actually do something to help them. Other times, their requests may not be within your control, and there won't be anything that you can do. In these situations it is critical that you just listen.
It's likely very challenging and frustrating for your loved one to accept so much help with things that used to be easy for them. Sometimes, the best way to help is to step back and let your loved one maintain their sense of independence.
Knowing when to step back or step in is a balancing act. Therapies they may be receiving can make your loved one tire easily, so be aware of their need to remain independent, but also of their limitations.
Be "Normal"
Having a stable home life can help your loved one feel secure and remain positive. Many people living with multiple myeloma don't want to be treated as though they are sick or fragile. They know they are sick, yet they want to enjoy the normal parts of life, too.
CAREGIVER TASKS
As a caregiver, you will likely perform the following types of tasks:
- Providing encouragement, emotional support, and love.
- Learning about multiple myeloma and available treatment options.
- Understanding the medication schedules and being prepared for possible side effects.
- Helping with activities of daily living (cooking, bathing) and household chores.
- Managing and scheduling appointments.
- Understanding insurance coverage and paying bills.
STEVE
Caregiver
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Steve, on the network of caregivers he and his siblings have created to support their mother.
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WATCH THE VIDEO
PATTIE
Caregiver
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Pattie, a three-time cancer survivor, is now her husband's caregiver as he manages his multiple myeloma.
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