Be Active & Supportive

Be Active

It's important for your loved one to stay as active as they possibly can but only under strict guidance from their healthcare provider. Always talk with their healthcare provider before they engage in physical activity - even light resistance activities.

Even with physical restrictions, there are many activities you can suggest:

  • When your loved one is feeling strong, encourage physical and social activities.
  • Encourage walking, swimming, or trying a yoga class. Again, check with their healthcare provider before starting any physical activities.
  • Have company over for lunch or dinner – and don't pass up the chance to celebrate a holiday or birthday!
  • Your loved one may need to avoid crowds or social activities when white blood cell counts are low and their immune system is weakened. Talk with their healthcare provider or oncology social worker about how to serve as your loved one's social "buffer" until their immune system is strong enough for visitors or outings.
  • When your loved one wants to stay involved with the day-to-day activities of running a home, ask if they want to go food shopping with you or help with the cooking.
  • When your loved one needs to rest and recuperate:
  • Play board games or cards.
  • Watch your favorite movies.
  • Check out books and magazines from the library.
  • Encourage taking up a new hobby, like knitting or journaling.

"Be proactive, educate yourself, and do everything you can to support your loved one on their road to better health."

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Be Supportive

This is an emotional time. Multiple myeloma affects you and your loved one in many personal ways. Being supportive is another part of the balancing act -- knowing when to step in or step aside.

  • If your loved one wants to talk, then talk.
  • Let your loved one set the tone of the conversation. There are many serious topics to address, but don't push. Only go as far as your loved one is willing to go.
  • Find a support group for your loved one. It may be easier for them to share their thoughts and feelings with others who are in similar situations.
  • Suggest counseling either for your loved one to do on their own or together with you.
  • If your loved one needs a sounding board, then listen.
  • Be prepared to do a lot of listening unless they ask for your input.
  • Remember, only they know how they feel.

The key is to love, be patient, and have a positive outlook.

STEVE
Caregiver

Steve, on the network of caregivers he and his siblings have created to support their mother.

 

 


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PATTIE
Caregiver

Pattie, a three-time cancer survivor, is now her husband's caregiver as he manages his multiple myeloma.

 

 


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